Jessie McCracken and Sherri Beauchamp interview the very talented Ufuoma Muwhen about her journey with Sickle Cell disease from discovering she had the disease when she was a child all the way to being cured of the disease and starting a non-profit to support those going through her lived experience. Her life perspective is full of wisdom for such young women as she's earned it living through her life so far. Ufuoma is a pleasure to speak with and her vision for the future is inspiring even if you've never heard of Sickle Cell or don't know anyone who has it. Check out this episode of The Love, YEG Show to be inspired by this young women's journey and the way she now lives her life, cured of Sickle Cell disease.
[1:15] What is Not Just You?
[2:20] What is Sickle Cell disease?
[4:44] When was Ufuoma diagnosed?
[7:33] Tracing the Sickle Cell trait with your partner
[9:50] Living Life With & Without Sickle Cell
[14:32] Transplants & modern medicine
[20:56] Being immunocompromised during a pandemic
[22:15] Having a match within her family
[24:03] How she started Not Just You
[26:24] The Stigma of Sickle Cell
[31:23] How to support Not Just You
[33:10] How Ufuoma wants to be remembered
For more information on Not Just You & Sickle Cell Disease or to connect with Ufuoma on social media, please visit: https://notjustyou.ca/
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